Beginning in 2005, National Porphyria Day has been celebrated each year on June 1st all across Canada with events to promote awareness.
A pity PORPHYRIA is still ‘unknown’ albeit ‘common’ in SA and it would be so great if the University of Cape Town could hold an open house to educate people on this sun-sensitive, genetic metabolic disorder.
This family in Prince Rupert, British Columbia who suggested a National Porphyria Day is the owners of the restaurant 'Vivier’s Cuisine’ in the Hotel Pacific Inn; who serves SOUTH AFRICAN CUISINE… (must be a family from SA)…
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