Friday, April 10, 2009

HaPpY 1st BiRtHdAy/AnNiveRsArY











HaPpY BiRtHdAy JC

Today is the 1st anniversary of your Medtronic Adapta ADDRO1 (Medtronic 5554 -53cm & 5054 - 58cm) dual-chamber pacemaker.














A year ago at the tender age of 20, and continuous misdiagnoses of asthma; he was diagnosed with SSS (sick sinus syndrome - bradycardia); only after his insistence on wearing a Holter monitor.














He is/was a professional rugby player in South Africa (Jr. Springbok) and still is a health/gym fanatic/freak.

His cardiologist said his heart is 100% and he can play rugby again?!!

However after a lot of reading and research I can’t see how he can take any impact with one lead/wire in his right atrium and one lead/wire in his right ventricle! Especially playing in the number 3 jersey, being a front row tight-head prop.
A friend of mine from Australia (young mom also with a pacemaker) said she's got two young friends (also with pacemakers), playing ice-hockey! Maybe I must get hold of their protective clothes...

He is battling to accept this pacemaker as well as not playing rugby again. He stopped training for a couple of months after the implant but is training once again, however he is still battling with fatigue and insomnia. I think he is acutely sensitive with this pacemaker controlling/taking over his body...

If any professional cardiologist/electro physiologist or knowledgeable person reading this and could advise any better options it would be greatly appreciated.

I wrote a letter to the Director of Cedars-Sinai Heart Institute -Dr. Eduardo Marban who is being honored by the American Heart Association’s Los Angeles Hear Ball with the ‘Passion of the Heart award’ More... http://www.csmc.edu/56.html

Dr. Marban is dedicated to finding ways to treat heart disease...

Marban says, "Sometime instead of getting a battery and a lot of metal put into your heart to create the pacemaker electronically, we may be able to do a simple treatment with a catheter injecting something into the heart, having it take root and the patient goes home with a new functioning pacemaker that we've created with biology not hardware."
These are the types of research Dr. Marban hopes will change the way heart disease is treated. They are the life blood of the institute and a few of his goals for the future.

We are desperately seeking for answers to help him now!
He wants to play rugby again...


4 comments:

ANIL said...

Het so baie aan julle gedink hierdie week. Kan nie glo dis 'n jaar nie. :-))

Zelia said...

Dankie vriendin vir die saam onthou!

Anonymous said...

hi dear Zelia,
my hubby has had 3 heart ops one at the age of 1 then at the age of 12 and another now at the age of 46 also a year ago this April, I showed my hubby your concerns and he says the up to date heart ops and things they use are just really fantastic...my hubbys heart has gone from strength to strength at his age. He does however look after himself, no smoking or alcohol or of such things....
I dont have the answer to say your son must go ahead and play or not as if I was in your shoes being a mommy I would have screamed and shouted NOOOOOOOOOOOOOOOOOOOOO but if the dr's or more so the Professors give the go ahead what do we as Moms say or suggest or do ???

Zelia said...

Dear Anonymous thanks for your comment. I really appreciate every little feedback; it helps!
Kind regards